Autism & ADHD Resources — Clinical Guidelines, Research & Support | AskSheldon

Autism & ADHD Resources

A curated collection of authoritative resources for autism and ADHD information, covering clinical guidelines, validated assessment instruments, key research, and UK support organisations. Whether you are a clinician, researcher, or someone exploring a personal question, these links are a solid starting point.

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Clinical Guidelines

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NICE CG128 — Autism in Under 19s: Recognition, Referral and Diagnosis

National guidance on recognising and diagnosing autism in children and young people, including multi-agency assessment recommendations.

NICE CG142 — Autism in Adults: Diagnosis and Management

Guidance on identifying, assessing, and managing autism in adults, including recommendations for multi-disciplinary assessment.

NICE NG170 — Autism: How to Support Autistic People

Quality standard covering support and interventions for autistic children, young people, and adults across health and social care settings.

NICE NG87 — Attention Deficit Hyperactivity Disorder: Diagnosis and Management

Guidance on recognising, diagnosing, and managing ADHD in children, young people, and adults.

NHS Autism Assessment Pathway

NHS overview of the autism diagnostic pathway, including what to expect during assessment and how to get referred.

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Assessment Tools

Validated instruments commonly used in autism and ADHD assessment. These tools are administered by trained professionals as part of a comprehensive diagnostic evaluation.

Did you know? The ADOS-2 and ADI-R are considered gold-standard diagnostic instruments for autism. Both are mentioned in NICE guideline CG142 and are used by NHS and private assessment teams across the UK. AskSheldon's MDT pipeline uses the same diagnostic frameworks to structure its evidence extraction.

ADOS-2 (Autism Diagnostic Observation Schedule)

Semi-structured, standardised assessment of communication, social interaction, and play. Considered a gold-standard diagnostic instrument for autism.

ADI-R (Autism Diagnostic Interview — Revised)

Structured interview conducted with a caregiver, covering developmental history, communication, social interaction, and restricted/repetitive behaviours.

AQ-10 and AQ-50 (Autism Spectrum Quotient)

Self-report screening questionnaires measuring autistic traits. The AQ-10 is a brief version recommended by NICE for initial screening; the AQ-50 provides a more detailed trait profile.

RAADS-R (Ritvo Autism Asperger Diagnostic Scale — Revised)

Self-report scale designed for adults who suspect they may be autistic. Covers language, social relatedness, sensory-motor, and circumscribed interests.

M-CHAT-R/F (Modified Checklist for Autism in Toddlers)

Parent-report screening tool for toddlers aged 16 to 30 months. Widely used in paediatric settings as an early autism screener.

DIVA-5 (Diagnostic Interview for ADHD in Adults)

Structured interview based on DSM-5 criteria for ADHD, covering current and childhood symptoms with examples for both patient and informant.

Research Papers

Influential papers on topics frequently raised in neurodiversity conversations, from autistic burnout and camouflaging to sex differences in presentation and mental health risks.

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"Having All of Your Internal Resources Exhausted Beyond Measure and Being Left with No Clean-Up Crew": Defining Autistic Burnout

Raymaker, D.M., Teo, A.R., Steckler, N.A., et al. (2020). Autism in Adulthood, 2(2), 132-143.

Putting on My Best Normal: Social Camouflaging in Adults with Autism Spectrum Conditions

Hull, L., Petrides, K.V., Allison, C., et al. (2020). Journal of Autism and Developmental Disorders, 47(8), 2519-2534.

Sex/Gender Differences and Autism: Setting the Scene for Future Research

Lai, M.C., Lombardo, M.V., Auyeung, B., Chakrabarti, B., & Baron-Cohen, S. (2015). Journal of the American Academy of Child & Adolescent Psychiatry, 54(1), 11-24.

Risk Markers for Suicidality in Autistic Adults

Cassidy, S., Bradley, L., Shaw, R., & Baron-Cohen, S. (2018). Molecular Autism, 9(42).

UK Support Organisations

National Autistic Society

The UK’s leading charity for autistic people. Provides information, support services, and campaigns for better understanding and provision.

ADHD Foundation

Neurodiversity charity offering training, resources, and support for people with ADHD, their families, and professionals.

Ambitious about Autism

National charity for autistic children and young people, running schools, programmes, and campaigns to improve education and employment outcomes.

Autistic Women & Non-Binary Network (AWN)

Organisation providing support, community, and resources for autistic women, non-binary people, and all others of marginalised genders.

AskSheldon Guides

In-depth guides and tools built into AskSheldon, covering everything from self-screening to understanding your diagnostic results.

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